This organization's goal focuses on serving individuals who have been diagnosed with MCT8. Our focus is on the people who are affected by this condition: the patients, the families, the caregivers, and the uninformed.
Below are several stories of those people, including our very own children. The personal stories include Susan's son, Jonathan, Lisa's son, Brandon, and Nicola's son, Aaron. The stories are inspirational, informative and, sometimes, challenging. They connect all of us who are impacted by MCT8 with hopes that we can foster greater understanding, support, and, eventually meet our goal of creating a support group, and awareness of this very rare condition. Just click on the following links to read each of their stories.
If you would like to share photos and your stories please email one of us and we will upload your stories and photo's for you. Please, share with us. We want to know who you are, and how this disruptive disorder has changed your life.