The MCT8 Organization would like to hear from you. Please let us know if the MCT8 Organization's website is meeting your needs or if you have any suggestions for improvements.  Or, just drop us a line to let us know that you visited our page and found it helpful.

You are welcome to contact either one of us by email we look forward to hearing from you. Also if you would like to join our listserv please feel free to email one of us and we will be happy to add you.

Susan D. Fidek: My son is Jonathan Fidek, age 7. He was the first boy properly diagnosed with the MCT8-specific THCT Deficiency in summer of 2002. We have been through many ups and downs over the years due to his condition. I would like to share my experiences with you. I am very pleased to finally be part of a support group and offer my support. We live in Saskatchewan, Canada. You may contact me by submitting your messge here.

Lisa Davis: I am from Oklahoma, and I have three children: 2 girls and 1 son. My son is affected by the MCT8-specific Thyroid Hormone Transporter Cell Deficiency and my 2 daughters are carriers of the disorder. Brandon is the tenth son in three generations to be affected by the disorder.  I act as one of the 2 parent advocates for gene testing for the University of Chicago. I am helping to create this website in hopes that we can bring a support base to other families with the disorder. You may contact me by submitting your message here.

Nicola Cowan: I am from the United Kingdom.  I have an older daughter and Aaron who is 4 and another girl on the way. He also has a mutation in his MCT8 gene. I am a mosaic carrier, which means the gene change is not present in all of my cells, and therefore, the gene change started in me around the time of my conception. I am happy to help in any way I can with this support group, as I am sure there are lots more of us mums out there who could do with someone to share their experiences with. Meeting other mums has been a great help to me. You may contact me by submitting your message here.